CareMirror: Bringing Caregiver Wellbeing into the Dementia Care Ecosystem
Interview study with 14 dementia caregivers probes CareMirror wellbeing ecosystem, revealing demands for control over clinical sharing and AI boundaries.
CareMirror is an envisioned caregiver wellbeing ecosystem with interconnected caregiver- and clinician-facing interfaces for longitudinal reflection, personalized support, and caregiver-controlled sharing. Semi-structured interviews with 14 family caregivers used the system as a design probe. Caregivers valued wellbeing attention and clinical visibility but found repeated reflection burdensome and worried automatic clinical sharing would inhibit candid disclosure, expecting AI to support rather than replace caregiver and clinician judgment.
- CareMirror design probe examined via semi-structured interviews with 14 dementia caregivers.
- Caregivers valued longitudinal awareness and clinically visible follow-up.
- Automatic clinical sharing raised concerns about inhibited candid disclosure.
- Participants wanted control over what information entered clinical records.
From the original article
1 min read at arxiv.orgFamily caregivers of people living with dementia shoulder emotional and practical responsibilities, yet their own wellbeing often remains peripheral to dementia care. We built CareMirror, an envisioned caregiver wellbeing ecosystem with interconnected caregiver- and clinician-facing interfaces for longitudinal reflection, personalized support, and caregiver-controlled sharing with clinical care.
By Jiayue Melissa Shi · arxiv.org
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